The diagnosis isn’t the problem — five providers agree it’s lymphatic malformation, a condition where lymphatic vessels don’t develop properly and fluid builds up. The problem is that every single one says they’re “not experienced in this” and refers her somewhere else, while the growth on her face keeps spreading. Dr. Bayo explains the condition, the truth that treatment options DO exist with the right specialist — and issues a mission to this community: if you know a lymphatic malformation specialist who could help Alyssa, add their name at CliniciansWhoCare.com and drop a comment below so we can say thank you.
Somebody watching this knows the right doctor.
Let’s find them 💛
Stitch with @alyssarausch2
#LymphaticMalformation #RareDisease #PatientAdvocacy #CliniciansWhoCare #VascularAnomaly #FindASpecialist #HealthcareMaze #MedicalCommunity #HelpAlyssa #DrBayo
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As an interim thing until you find a doctor, roll castor oil on it in a downward motion. It is messy, but it can’t hurt and sometimes it’s shown to help a lot of things. Just an idea. Saying prayers for you
Please try the HOLISTIC route, go see a kinesiology specialist. Seriously. PLEASE. I really hope this WARRIOR Woman sees this comment & actually searches for these professionals I've suggested. I have seen worse than this, & literally their 1st appointment there was significant progress/healing taking place & continued on , FULLY HEALED. Wish more would realize it's NOT "woo-woo" & actually ANCIENT medicine & is the real deal. Actual CURES not customers/meds for life. 🫶 🫂 🙏 🙌
Go to Mayo, or another research facility
У меня точно так же было.
Мой диагноз :Саркоидоз,меня положили в больницу НИИ Склифосовского,сделали биопсию,потом перепроверили стёкла,в начале подозревали рак Лимфома,так как я похудела на 20 кг.но я была спокойна,потому что в роду ни у кого не было Рака.
Подтвердили:Генерализованный Саркоидоз,с повреждением лимфы.
Как лечили: 3 дня я была под капельницами,(лежала14 дней),потом уколы, таблетки,(если,кого то заинтересует,пропишу точно )сильно потела ,что промокала даже подушка.На 4 ый день я ожила.
Потом курс гормоны пропила.
С 6 таблоеток Преднизолона постепенно перешла на1 таб.4 мг.
1 раз в неделю2 таб.5 мг.Метотрексат
И на следуюший день1 таб.5мг.Фолиевая кислота
Ещё в больнице все восполённые лимфоузлы уменьшились.
I can relate or at least to a certain degree. We may have different health problems but similar experiences. The first time I got a migrane I was no older than the age of 7. I was at Chuck E Chesse birthday party and out of nowhere i had an unbearable pain in my head (migrane). I begged my mom for us to leave. The screaming, lights, and smell of food made me sick. Fortunately , i threw up and the pain went away.
Unfortunately, thar was only the beginning. As time went on I was having migranes nearly everyday. I went from hospital to hospital, doctor to doctor and they wouldn't take it seriously, did very little, inaccurately diagnose me, accuse me of faking it, tell my mother to get over the counter meds, or at most offered me a CT scan. It got so bad and I missed so much school that my third grade teacher had to visit me at home.
That went on for about two to three years and finally I have an appointment with a neurologist. He decided that giving me a MRI wouldn't hurt. It turned out that I have AVM (arteriovenous malformation).
People can have an AVM in any part of the body but mine is located in my brain. Short explanation our veins and arteries are connected by capilary beds which slows down and filters the blood as it travels. Well, I'm basically missing capillary beds in those regions. The veins and arteries are jumbled up together like a knot.
Not only is it located in my brain but I have not just one but two of them located in two different regions of my brain. On top of that out of a 1-7 scale mine were ranked a 5 and rather large.
I have one in the frontal lobe and the other in the occipital. I've already mentioned that I suffer migranes, but due to one of the locations I'm 25% blind if we were to divide the eye into four quadrants and it impacts both eyes.
I'm nearly 30, as severe as my migranes can get if I hadn't had that symptom I likely would've had a brain bleed by now and that's how most people are diagnosed. Some people do recover from it if caught in time and rushed to surgery but it certainly has a negative effect. Depending on where the AVM is located you can forget how to walk, talk, become handicapped, or die.
In fact after my last surgery I began to walk incorrectly not how to walk completely but walking funny so i had to do physical therapy due to this on top of no improvement from the migranes, after the third surgery my neuro surgent decided it's best for me to cope with it rarher than causing additional possibly irreversible problems.
So I'm kind of a sitting duck hoping that it never ruptures because he was unable to block off the tangle completely. I just have to keep visiting my neurologist and pray that it never occurs but in the case that it does the surgeon will go from there and my fate is unknown. 😶
Salt , Salt eat salt for migraines. Magnesium, sodium, D, C, B complex. , black seed and oregeno oil, monolaurin for immune system.
7 years rib bulge no diagnosis painful..
Tell her to put Castor Oil on it ASAP, it breaks up tumors, put it on 3 times a day or whenever possible! 😢
I know someone who had it removed and now her lymphs are fccked and she sweats so much.
I’d straight up lance it and see her up and throw some antibiotics at it. You’re welcome. I’m legit. You’ll be fine.
I had a growth just like this! Emergency room told me I needed to see an oral surgeon. Finally, I just couldn't take the stares anymore and it was getting huge. It was an abscess that formed from a tooth that needed to be pulled. I never even had a toothache.
Come to Boston or Rhode Island, we can help you here. We have the best doctors in the country. Harvard and Brown University
Homeopathy? Dr Andre Saine, Canada.
Can it be drained?
Looks like an enlarged lymph gland. Lymphatic drainage?
is that a sialocoele? both this and a lymphatic drainage issue can appear suddenly and grow to this size pretty quickly if drainage is blocked. Also, she needs to have an MRI and/or CT scan if she has not already, to better classify the type of tissue that is the problem. Both of these issues are NOT life threatening though can be scary as hell and also uncomfortable. Best of luck! please be sure to post once you have a firm Dx and treatment plan. :).
This is our medical system, this is why we need to advocate for ourselves and ask for test even if they think we dont need it, we pay we can ask for what testing we want done when nothing is being done
🙏🏻
🙏🙏🙏
I hope you can find some answers, praying for you.
Cat scratch fever
You have only seen five doctors? You need to see about a hundred to 200 doctors to find the right person. Most doctors are idiots
🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽
If you can call the mayo clinic. They are known for taking on the most difficult medical cases
literally may Jesus Christ bless you and your hard work, resources, and dedication to take the time to help sis out
You need an ultrasound and ct scan of your neck. Have you thought about medical tourism ?
I really hope she finds the right help🙏 my brother had burkitt lymphoma. And he also heard a lot of the dr's say it's only an infection or so. Fortunately a dr said something else and he was operated and got this thing out. It was sent for tests and came back positive for burkitt. We never expected this, because all the other doctors said its nothing. He is healthy now and i am so happy someone tool the time to think a bit more. Could this be burkitt lymphoma? I hope not! Just wanted to say, there is another possibility, because it also took longer with my brother, for the doctors to go there.
I wish you all the best✊️ and a quick relief with the right treatment❤
It looks like her abscess has a vascular feed.
It will only get bigger, if this is the case.
Oh noooo I'm scared for my life, let's make a TikTok about it
You are a emphatic person and I see you care but are also a doctor. And what i am going to say is not to hurt your feelings but maybe to wake young. A lot of black women make problematic choices by using whitening products to whiten them self and get straight hair but not by straightening like in older days, but by using fake hair, wigs and ruin their features . ~you have a beautiful face but you went to the wrong beauty specialist You must know by now The hair you lost will not grow back but maybe you can stop with this fake hair and try to protect the hair roots you sill have. Use a scarf or what ever to wear but stop using this toxic wigs and fake hair
You gone be ok it’s just a misquote bit put some Campho-Phenique on it
Prayer – I’d say start there. It’s not the last resort, it’s your primary line of defense. It’s your PDW and CCW. In Jesus name, we stand against the spirit of infirmity and cast it off this woman! In Jesus name!
What is that .. does it has really anything to do with taking supplements
Pretty sure she can google or chatgpt specialists who treat that. Might be across the country, but someone will come up. Literally simple
Bless her heart 🙏🏻💙 I was a medical mystery also & went thru being diagnosed with non Hodgkin's lymphoma to CAT SCRATCH (I still think they needed something to put in my chart… So Cat Scratch was what they chose) 😒… It was exhausting being sent from Dr to Dr & my neck was bigger than hers one oops surgery… The DR confused my salvia gland with the lymph node & took it out 1st.. A complete nightmare… Praying she gets answers fast🙏🏻 I was extremely sick for a long time. & When I start feeling bad now it sends me into a panic that whatever was happening to me is going to start over😭
Yes Mam Evangelist Ankit is going to be @ The Grand Old Opry a huge HEALING MINISTRY in a few days! He was just @ the Doulby Theatre in LA!! yes where have the Oscars))I witnessed Many Amazing Healings INCLUDING my husband who was in car accident 34 years ago ( we were only married 4 years @ the time!) Now just had 38th Anniversary! Michael can hear out of his right ear!! Jesus healed him through Ankit!! Michael He could Not hear out of right ear for 34 years!! Bless God!
Maybe a place like Mayo Clinic would be a good place to go?
Maybe a place like Mayo Clinic would be a good place to go?
This poor woman. I will be praying for her. You are such a blessing to help people with finding answers with doctors. God bless you Dr. Bayo.
They should drain it. Lymphatic dr..
Have lymphatic Dr. Take ultra sound test…. maybe. Drink apple cider vinegar w/ equal parts raw honey and cinnamon, ginger, and turmeric. Mix w/ 8oz. water. And take black garlic. Anď have someone give a light message to help drain it message towards collar bone, and then toward the left on the collar bone and then down towards the heart.❤❤ to help flush it out. And maybe put a wash cloth of Caster oil on it over night…
Nobody's biopsied it
If it’s lymph fluid build up lymphatic drainage by a remedial therapist should work
I would really like an update on this.